Self Help Clearinghouse
Maple Syrup Urine Disease
This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site. Maple Syrup Urine Disease Family Support Group
National network. Founded 1982. Opportunity for support and personal contact for those with maple syrup urine disease and their families. Provides information on MSUD. Aims to strengthen the liaison between families and professionals. Encourages research and newborn screening for MSUD. Newsletter ($10/yr), phone support, conferences and advocacy.
Write:
MSUD Family Support Group
82 Ravine Rd.
c/o Sandra Bulcher
Powell, OH 43065
Voice: 740-548-4475
Website: http://www.msud-support.org
E-mail: dbulcher@aol.com
Verified: 10/10/2008The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
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