Self Help Clearinghouse

Mucopolysaccharidoses / Morquio's Syndrome

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The International Morquio Support Group

International network. Founded 1999. Provides support and education for families of children with Morquio Type A. Helps educate health care professionals about this lysosomal storage disease. Funds research. Maintains database of families. Referrals to physicians and medical information, pen pals, phone support, conferences and newsletter, online guestbook and helpful links.
Write:
Morquio Support Group
PO Box 64184
Tucson, AZ 85728-4184
Voice: 520-744-2531
Fax: 520-744-2535
Website: http://www.morquio.com
E-mail: mbs85705@yahoo.com
Verified: 10/9/2008

National MPS Society

National. Founded 1974. Provides support and hope for individuals with mucopolysaccharidoses or mucolipidoses (and their families) through research, advocacy, public education and parent referral service for support networking.
Write:
National MPS Society
4220 NC Highway 55, Suite 140
Durham, NC 27713
Voice: 919-806-0101
Website: http://www.mpssociety.org
E-mail: info@mpssociety.org
Verified: 10/8/2008

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The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org

Copyright © 2009 American Self-Help Group Clearinghouse. All rights reserved.

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