Self Help ClearinghouseMitochondrial Disorders| This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site. |
United Mitochondrial Disease Foundation (UMDF)National network. 13 chapters. 17 affiliated groups. Founded 1995. Chapter and support groups, networking for families affected by mitochrondrial disease, a genetic degenerative disease. Provides support to affected individuals and families, and promotes research and education for the diagnosis, treatment and cure of mitochondrial disorders. Quarterly newsletter, information and referrals, library of medical publications, patient registry, phone help and annual symposium. Awards research grants. Write: UMDF 8085 Saltsburg Rd. Pittsburgh, PA 15239 Voice: 412-793-8077 Fax: 412-793-6477 Website: http://www.umdf.org E-mail: info@umdf.org Verified: 10/18/2008
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information. For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org Copyright © 2009 American Self-Help Group Clearinghouse. All rights reserved.
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