National network. Founded 1982. Provides information and resources for leukodystrophy patients and their families. Communication network among families. Promotes research, public and professional awareness. National conference and quarterly newsletter. Dues $25/family; $50/professional.
Write:
United Leukodystrophy Foundation, Inc.
2304 Highland Dr.
Sycamore, IL 60178
Voice: 1-800-728-5483
Fax: 815-895-2432
Website: http://www.ulf.org
E-mail: office@ulf.org
Verified: 10/8/2008
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
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