National network. Founded 2000. Mutual support and information for persons with Kennedy's disease (aka spinal and bulbar muscular atrophy), their families and caregivers. Opportunity to share personal experiences to help alleviate the feeling of aloneness and to engender hope and a positive attitude. Sharing of information regarding diagnosis, treatment and current research. Online chat room every two weeks.
Write:
Kennedy's Disease Association, Inc.
P.O. Box 1105
Coarsegold, CA 93614-1105
Voice: 559-658-5950
Website: http://www.kennedysdisease.org
E-mail: info@kennedysdisease.org
Verified: 10/9/2008
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org
Copyright © 2009 American Self-Help Group Clearinghouse. All rights reserved.