Self Help Clearinghouse

Holoprosencephaly

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Holoprosencephaly Support Group

Online. 554 members. Founded 1999. Mutual support for parents and families of children with holoprosencephaly (HPE). HPE is a rare birth disorder caused by the failure of the forebrain of the embryo to properly divide, causing defects in the development of the face and brain structure and function.
Website: http://health.groups.yahoo.com/group/holoprosencephaly/
Verified: 9/23/2008

Families for HoPE, Inc.

Offers support and education to families of infants and children diagnosed with holoprosencephaly (HPE), a congenital brain malformation. Offers support for all stages of the HPE journey.
Write:
Families for HoPE, Inc.
1219 N. Wittfield St.
Indianapolis, IN 46229
Voice: 317-898-5556
Website: http://www.familiesforhope.com
E-mail: info@familiesforhope.com
Verified: 10/8/2008

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The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org

Copyright © 2009 American Self-Help Group Clearinghouse. All rights reserved.

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