International. Founded 1991. Mutual support and education for persons interested in hereditary hemorrhagic telangiectasia (aka Osler-Weber-Rendu syndrome). Supports clinical and genetic research. Counseling and advice for patients. Referrals to appropriate treatment centers. Annual patient/doctor conference. Tri-annual newsletter 'Direct Connection.' Aims to protect all members under the Right To Privacy Act. Dues $45/yr.
Write:
HHT Foundation International, Inc.
P.O. Box 329
Monkton, MD 21111
Voice: 1-800-448-6389 (US), 410-357-9932 (International)
Fax: 410-357-9931
Website: http://www.hht.org
E-mail: hhtinfo@hht.org
Verified: 10/8/2008
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