Self Help Clearinghouse

Hallerevorden-Spatz

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NBIA Disorders Association

International network. Founded 1996. Provides emotional support to families affected by Neurodegeration with Brain Iron Accumulation - a rare progressive neurological disorder resulting in iron deposits in the brain that causes loss of muscle control. Formerly Hallervorden-Spatz syndrome. Educates public on neurodegenerations with brain iron accumulation, supports and monitors research through grants and BioBank. Newsletter, literature, bi-annual conferences, on-line listserv, family networking program and advocacy efforts.
Write:
NBIA Disorders Association
2082 Monaco Ct.
El Cajon, CA 92019-4235
Voice: 619-588-2315
Fax: 619-588-4093
Website: http://www.NBIAdisorders.org
E-mail: info@NBIAdisorders.org
Verified: 9/19/2007

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The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

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Copyright © 2008 American Self-Help Group Clearinghouse. All rights reserved.

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