U.S. and Canadian network. 3 affiliated groups. Founded 1979.
Mutual support and information sharing among parents of children and
patients with Glycogen Storage disease. Fosters communication
between parents, patients and professionals, creates public
awareness and encourages research. Offers GSDnet support group
via e-mail. Newsletter, phone support and conference.
Write:
Association for Glycogen Storage Disease
P.O. Box 896
Durant, IA 52747
Voice: 563-785-6038
Website: http://www.agsdus.org
E-mail: maryc@agsdus.org
Verified: 9/28/2007
The above information was "verified" as correct on the date at the end of each entry. Since American
Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for
these organizations can change, it is not possible to keep every entry in American Self-Help Group
Clearinghouse database completely current and accurate. Please check with the organizations listed
for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group
Clearinghouse web site at http://www.mentalhelp.net/selfhelp
If you find information that is not current, please contact American Self-Help Group Clearinghouse
at: admin@selfhelpgroups.org
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