Self Help Clearinghouse

Ehlers Danlos Syndrome

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Ehlers-Danlos National Foundation

National. 35 local groups. Founded 1985. Provides resources for Ehlers-Danlos syndrome patients, families and health care professionals. Mission is to disseminate accurate information, provide a network of support and communication and to foster and support research. Online message boards for EDNF members.
Write:
Ehlers-Danlos National Foundation
3200 Wilshire Blvd., S. Tower, Suite 1601
Los Angeles, CA 90010
Voice: 213-368-3800
Fax: 213-427-0057
Website: http://www.ednf.org
E-mail: staff@ednf.org
Verified: 10/24/2007

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The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

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