Self Help Clearinghouse

Ectodermal Dysplasias

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National Foundation for Ectodermal Dysplasias

National network. Founded 1981. Distributes information on ectodermal dysplasia syndrome and treatments. Provides support programs for families and funds research projects. Quarterly newsletter. Annual family conference and regional conferences, dental implant program and scholarship opportunities. Directory of members for informal contacts among families.
Write:
National Foundation for Ectodermal Dysplasias
410 E. Main St., Box 114
Mascoutah, IL 62258
Voice: 618-566-2020
Fax: 618-566-4718
Website: http://www.nfed.org
E-mail: info@nfed.org
Verified: 10/9/2008

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The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org

Copyright © 2009 American Self-Help Group Clearinghouse. All rights reserved.

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