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DEBRA of America(Dystrophic Epidermolysis Bullosa Research Association) National network. Founded 1980. Support and information for families affected by epidermolysis bullosa. Promotes research, provides education for patients, families and professionals, emergency financial support, emergency wound care supplies, New Family Advocate program, newsletter, biennial national conference, information and referrals. Write: DEBRA of America 16 E. 41st., 3rd Floor New York, NY 10017 Voice: 212-868-1573 or 1-866-332-7276 Fax: 212-868-9296 Website: http://www.debra.org E-mail: staff@debra.org Verified: 10/9/2008
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