Self Help Clearinghouse

Coffin-Lowry Syndrome

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The Coffin-Lowry Syndrome Foundation

International network. Founded 1991. Serves as a clearinghouse for information on Coffin-Lowry syndrome. Forum for exchanging experiences, advice and information with other CLS families. Seeks to become a visible group in the medical, scientific, educational and professional communities in order to facilitate referrals of newly diagnosed individuals and to encourage medical and behavioral research. Maintains mailing list of families and professionals. Provides newsletter, family support and informational packet.
Write:
The Coffin-Lowry Syndrome Foundation
3045 255th Ave. SE
c/o Mary Hoffman
Sammamish, WA 98075
Voice: 425-427-0939
Website: http://clsf.info
E-mail: CoffinLowry@Gmail.com
Verified: 10/1/2008

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For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

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Copyright © 2009 American Self-Help Group Clearinghouse. All rights reserved.

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