International network. Founded 2001. Sharing and caring for those with Charcot-Marie-Tooth disease and other hereditary neuropathies. Extensive library of support materials and resources available. Publishes informational brochures.
Write:
Hereditary Neuropathy Foundation
1751 2nd Ave., Suite 103
New York, NY 10128
Voice: 212-722-8396
Website: http://www.hnf-cure.org
E-mail: info@hnf-cure.org
Verified: 10/9/2008
National. 25 affiliated groups. Founded 1983. Information and support for patients and families affected by Charcot-Marie-Tooth disorders (also known as peroneal muscular atrophy or hereditary motor sensory neuropathy). Referrals, newsletter, phone help, support groups and conferences. Assistance starting similar groups.
Write:
Charcot-Marie-Tooth Association
2700 Chestnut St.
Chester, PA 19013
Voice: 1-800-606-2682
Fax: 610-499-9267
Website: http://www.charcot-marie-tooth.org
E-mail: info@charcot-marie-tooth.org
Verified: 10/1/2008
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
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