Self Help Clearinghouse
Cavernous Angioma
This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site. Angioma Alliance
Online. Founded 2002. Support and information for any person affected by cavernous angioma of the brain and spine. Educational materials, support via a community forum, listserv, chats and contact information for research studies. Maintains tissue/DNA bank and patient registry. Site available in Spanish and (in a limited way) Portuguese. Hosts annual national family conferences and scientific workshops for researchers. Works to increase physician and public awareness of the illness.
Voice: 1-866-432-5226
Website: http://www.angiomaalliance.org
E-mail: info@angiomaalliance.org
Verified: 9/30/2008The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org
Copyright © 2009 American Self-Help Group Clearinghouse. All rights reserved.
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