International network. Founded 1991. Mutual support for persons
affected by bladder exstrophy including: parents of children with
bladder exstrophy, adults, healthcare professionals and others
interested in exstrophy. Newsletter, literature, information and
referrals, informal pen pal program, conferences, advocacy and
directory of members. Informal kids e-mail exchange. Dues $25/yr.
Write:
Association for the Bladder ExstrophyCommunity
3075 First St.
La Salle, MI 48145
Voice: 1-866-300-2222 (Cindy Buckley)
Website: http://www.bladderexstrophy.com
E-mail: admin@bladderexstrophy.com
Verified: 10/16/2007
The above information was "verified" as correct on the date at the end of each entry. Since American
Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for
these organizations can change, it is not possible to keep every entry in American Self-Help Group
Clearinghouse database completely current and accurate. Please check with the organizations listed
for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group
Clearinghouse web site at http://www.mentalhelp.net/selfhelp
If you find information that is not current, please contact American Self-Help Group Clearinghouse
at: admin@selfhelpgroups.org
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