National Organization for Rare Disorders, Inc.Behcet's SyndromeImportant It is possible that the main title of the report Behcet's Syndrome is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.
Synonyms- Adamantiades-Behcet's Syndrome
- BD
- Behcet's Disease
- Halushi-Behcet's Syndrome
- Oculo-Bucco-Genital Syndrome
- Touraine's Aphthosis
- Triple Symptom Complex of Behcet
Disorder SubdivisionsGeneral DiscussionBehcet's syndrome is a rare multisystem inflammatory disorder characterized by ulcers affecting the mouth and genitals, various skin lesions, and abnormalities affecting the eyes. Symptoms include areas of abnormal mucous membrane changes (lesions) of the mouth and genitals that tend to disappear and recur spontaneously. Inflammation of the eyes (anterior uveitis, posterior uveitis, or panuveitis) also affects individuals with Behcet's syndrome. Additional systems of the body may also be affected including the joints, blood vessels, central nervous system, and/or digestive tract. The exact cause of Behcet's syndrome is unknown. ResourcesAmerican Behcet's Disease Association PO Box 869 Smithtown, NY 11787-0869 USA Tel: (631)656-0537 Fax: (480)247-5377 Tel: (800)723-4238 Email: info@behcets.com Internet: http://www.behcets.com or http://www.behcetssyndrome.org
Vasculitis Foundation P.O. Box 28660 Kansas City, MO 64188 USA Tel: (816)436-8211 Fax: (816)436-8211 Tel: (800)277-9474 Email: vf@vasculitisfoundation.org Internet: http://www.vasculitisfoundation.org
National Association for Visually Handicapped 22 West 21st Street New York, NY 10010 USA Tel: (212)889-3141 Fax: (212)727-2931 Email: staff@navh.org Internet: http://www.navh.org
American Autoimmune Related Diseases Association, Inc. 22100 Gratiot Avenue Eastpointe, MI 48021-2227 Tel: (586)776-3900 Fax: (586)776-3903 Tel: (800)598-4668 Email: aarda@aarda.org Internet: http://www.aarda.org/
Arthritis Foundation 1330 West Peachtree Street Atlanta, GA 30309 USA Tel: (404)872-7100 Fax: (404)872-0457 Tel: (800)568-4045 Email: help@arthritis.org Internet: http://www.arthritis.org
NIH/National Arthritis and Musculoskeletal and Skin Diseases Information Clearinghouse 1 AMS Circle Bethesda, MD 20892-3675 USA Tel: (301)495-4484 Fax: (301)718-6366 Tel: (877)226-4267 TDD: (301)565-2966 Email: NIAMSinfo@mail.nih.gov Internet: http://www.niams.nih.gov/Health_Info
NIH/National Eye Institute Building 31 Rm 6A32 31 Center Dr MSC 2510 Bethesda, MD 20892-2510 United States Tel: (301)496-5248 Fax: (301)402-1065 Email: 2020@nei.nih.gov Internet: http://www.nei.nih.gov/
National Institute of Neurological Disorders and Stroke (NINDS) 31 Center Drive 8A07 Bethesda, MD 20892-2540 Tel: (301)496-5751 Fax: (301)402-2186 Tel: (800)352-9424 Email: braininfo@ninds.nih.gov Internet: http://www.ninds.nih.gov/
Behcet's Organisation Worldwide PO Box 27 Watchet Somerset, Intl TA23 0YJ United Kingdom Tel: 07713 220303 Email: information@behcetsuk.org Internet: http://www.behcets.org
MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network 150 Custer Court Green Bay, WI 54301-1243 USA Tel: (920)336-5333 Fax: (920)339-0995 Tel: (877)336-5333 Email: mums@netnet.net Internet: http://www.netnet.net/mums/
Erythema Nodosum Yahoo Support Group Internet: http://health.groups.yahoo.com/group/erythema_nodosum_Group/
CNS Vasculitis Foundation 9930 Morningfield San Antonio, TX 78250-3743 USA Tel: (210)523-8234 Email: pamela@cnsvf.org Internet: http://www.cnsvf.org
Autoimmune Information Network, Inc PO Box 4121 Brick, NJ 08723 Tel: (732)664-9259 Email: autoimmunehelp@aol.com Internet: http://www.aininc.org
European Society for Immunodeficiencies (ESID) c/o Dr. Esther de Vries Jeroen Bosch Hospital Dept. Paediatrics P.O. Box 90153 Hertogenbosch, 5200 ME's Netherlands Tel: +31 73-6992965 Fax: +31 73-6992948 Email: info@esid.org Internet: http://www.esid.org
AutoImmunity Community Tel: (919) 552-9057 Email: bandrews@autoimmunitycommunity.org Internet: http://autoimmunitycommunity.org
For a Complete ReportThis is an abstract of a report from the National Organization for Rare Disorders, Inc. ® (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians. It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder. For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org
Last Updated: 2/17/2009 Copyright 1986, 1987, 1988, 1989, 1990, 1992, 1994, 1995, 1997, 1998, 1999, 2000, 2002, 2004, 2009 National Organization for Rare Disorders, Inc.
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