These stories are based on information gathered from health
professionals and consumers. They may be helpful as you make important health
decisions.
Georgia, age 81: I've been on regular
hemodialysis for the past 5 years. When I first started, I felt good and my
activities were not limited. I was diagnosed with heart failure 2 years ago.
Since then, my physical health has deteriorated. My doctor and I have discussed
the possibility of kidney transplant, but because of my deteriorating health,
we feel this would not be a good option. My preference is to stop dialysis and
receive hospice care. I'm tired of not feeling good and want to die
comfortably.
Marco, age 45: I've had family members receive
dialysis because of end-stage renal disease. In fact, my aunt told me I would
hate dialysis because she saw how miserable my grandmother was when she
received dialysis over 30 years ago. Dialysis has changed so much since then. I
started hemodialysis 4 years ago and have felt fine. In fact, I feel better
than I did before starting dialysis! There certainly are diet changes, and
sometimes my dialysis schedule is not convenient. However, I feel these are
small prices to pay for feeling better. I'm awaiting a kidney transplant.
Although I look forward to the day when I won't need dialysis, I wouldn't
consider stopping.
Max, age 49: I have diabetes that has been
very difficult to control. I received a kidney transplant 20 years ago. Two
years ago, my kidneys began to fail and I started kidney dialysis. Even with
dialysis, I have not felt good. Even with another kidney transplant, there is
no guarantee that I will feel good again. I have had problems with fluid
retention and my appetite is poor. I am tired of diet restrictions and the
limitations of dialysis. I have discussed my wish to stop dialysis with my
family and doctor, and they have been supportive.
Debbie, age 36: I started dialysis 3 years ago
when my chronic glomerulonephritis progressed to ESRD. Even on daily peritoneal
dialysis, I lead an active and productive life. I work full time and travel a
lot. Even though dialysis requires organization, I don't feel that it
negatively impacts my life. I feel good most of the time. At this point in my
life, I wouldn't consider stopping dialysis.