Dupuytren's disease: Should I have hand surgery?
- Get the facts
- Compare your options
- What matters most to you?
- Where are you leaning now?
- What else do you need to make your decision?
1. Get the FactsYour options- Have surgery to relieve symptoms of Dupuytren's disease.
- Try other treatments instead, such as finger exercises,
physical therapy, or steroid shots.
Key points to remember- Surgery can improve, but may not completely restore, the use of
your hands.
- Dupuytren's disease comes back after surgery nearly
half the time. You may need another surgery to keep the use of your hands.
- If you are able to move your fingers and do daily activities,
you might benefit from other treatments first, such as finger exercises,
physical therapy, or
steroid shots.
- Delaying surgery until your condition is severe—for example,
waiting until you are unable to use your hands to do daily activities—could
make the surgery and your recovery harder.
FAQsWhat is Dupuytren's disease? Dupuytren's disease
(say "doo-pwee-TRAHZ") is an abnormal thickening of tissue beneath the skin in
the palm of the hand. The first symptom often is a small lump (nodule) in the
palm, often near the base of the fingers. In some people, a fibrous cord may
form in the palm tissue. The cord pulls the finger toward the palm. This is
called Dupuytren's contracture . If the disease
gets worse, over time you may not be able to flatten your palm on a flat
surface, such as a table. Severe forms of the disease can make everyday
activities, such as picking up items, putting on gloves, or washing hands,
difficult or impossible. What kinds of surgery are done for Dupuytren's disease? There are two types of surgery that can help you use your hand
again: - Fasciectomyis the
most common surgery. It involves removing the thick and fibrous tissue beneath
the skin of the palm. If your palm skin is stuck to the fibrous tissue, the
skin may be removed along with the tissue.
- Fasciotomy is less common. The surgery involves using small
cuts to divide the cords of fiber in the palm. It is only done in people who
aren't likely to benefit from fasciectomy or whose disease has come
back.1
Delaying surgery until your condition is severe—for
example, waiting until you are unable to use your hands to do daily
activities—could make the surgery and your recovery harder. What are other treatments for Dupuytren's disease? - In mild cases of the disease, regular
stretching of the fingers may be enough to keep the use of your hand.
Twice-daily sessions of massaging the hand and gently stretching your fingers
back relieves tightness and helps keep your fingers
flexible.
- Physical therapy and
range-of-motion exercises may help you keep the use of
your hand.
- Shots of lidocaine or
steroid medicine or both may relieve symptoms for a
while.
- Splinting may provide some relief.
What are the risks from surgery for Dupuytren's disease? Complications after surgery for Dupuytren's disease occur in about 1 out
of 5 cases.2 Problems can include: - Delayed wound healing. This is the most
common problem, and it is often mild.
- Infection of the
wound.
- Stiffness or
contracture, with the fingers still being
curled.
- Nerve injury.
- Loss of circulation in the
fingers.
- A mass of blood or blood clots under the skin
(hematoma).
- Damage to the skin, caused by trying to surgically
separate the skin from the fibrous tissue.
- Reflex sympathetic dystrophy.
Surgery can improve, but may not completely restore, the
use of your hands. And it can't cure the disease.3 The
disease comes back after surgery nearly half the time. Even after a successful
surgery, you may need another surgery later to keep the use of your hands.
What follow-up treatment is needed after surgery? Home treatment and physical therapy are important to the success of your
surgery. Exercises A physical
or occupational therapist can teach you how to do exercises to gently move your
fingers through their normal range of motion. These exercises help prevent
stiff joints.
Range-of-motion exercises should not stress or
overextend the joint. Splints
Splints may be used after surgery for about 8 to 10 weeks to help restore the
use of the hand and keep symptoms from coming back. Splints support your palm
and help straighten your fingers during recovery. In some cases,
splints are worn only at night, but in others they are worn at all times,
except when the wound needs cleaning or during finger exercises. Your doctor
can teach you how and when to wear the splint. Why might your doctor recommend surgery? Your
doctor might suggest surgery if: - You have been doing finger exercises
regularly, but your fingers are increasingly bent to the palm and you can't
flatten your hand.
- You have pain from nodules.
2. Compare Options| | Have surgery for
Dupuytren's disease | Don't have surgery for
Dupuytren's disease |
|---|
| What is usually involved? | - Surgery takes 30 minutes to 2 hours. You may be asleep or awake,
depending on the type of surgery. You can go home the same
day.
- You'll need to do finger exercises. You may wear a splint for 8 to 10 weeks after surgery.
| - You do regular finger exercises and stretching.
- You
do physical therapy and
range-of-motion exercises.
- You may receive shots of lidocaine or
steroid medicine.
- You may wear a
splint.
| | What are the benefits? | - Surgery can restore at least some of the use of your hands and fingers.
| - You may be able to keep the
use of your hand and fingers without surgery.
| | What are the risks and side effects? | - The disease can come
back in the same place or in a new area of your hands.
- You may need another surgery to keep the use of your
hands.
- All surgery has risks, including bleeding, infection, and nerve
damage. Your age and your health can also affect your risk.
| - Delaying
surgery until your symptoms are severe—for example, waiting until you are
unable to use your hands to do daily activities—may make surgery and recovery
harder.
- Steroid shots are not a long-term treatment, because repeated
shots can weaken tissue.
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Personal storiesAre you interested in what others
decided to do? Many people have faced this decision. These
personal stories may help you decide. Personal stories about having surgery for Dupuytren's diseaseThese stories are based on information gathered from
health professionals and consumers. They may be helpful as you make important
health decisions. "I have a
mild case of Dupuytren's disease, which means my ring finger is somewhat curled
and won't lie flat. I know there is some research going on for new nonsurgical
treatments, and I'm hoping that my daily exercises will help me keep my
flexibility for as long as possible. Surgery is not a choice for me right now.
" "My fingers have lost most of their mobility
and it's increasingly difficult for me to drive or wash the dishes. For over 10
years, my doctor and I have been talking about the possibility of surgery, and
I think it's time. I'm aware that the disease may return, but it's worth it to
have some relief and to be able to use my hands again. " "My parents
both have Dupuytren's disease, and I developed a nodule when I was still in my
30s. I have been able to avoid surgery so far by exercising my hands several
times a day. That seems like a lot, but my physical therapist believes these
range-of-motion exercises are working. My fingers are getting a little more and
more bent all the time, but I can still pick up objects, button my clothes, and
put on gloves. I'm concerned about the risks of surgery and the good
possibility that the condition will return after surgery. I'm going to continue
to work with my doctor and physical therapist and see if I can avoid surgery
entirely. " "I have had symptoms of Dupuytren's disease
for decades, but they are getting a lot worse. I can't stick my hands in my
pockets, or pick up things, or even write. I've held off having surgery and did
really well with exercises, but with the loss of finger movement, I am
welcoming the relief that should come from a release of this contracture.
" 3. Your FeelingsYour personal feelings are just as important as the medical facts. Think about what matters most to you in this decision, and show how you feel about the following statements.
Reasons to have surgery for Dupuytren's disease
Reasons not to have surgery
I can't do daily activities, such as picking up things or washing my hands.
I'm still able to do everyday activities.
More important
Equally important
More important
I've done finger exercises, and they aren't helping me.
Finger exercises have helped me.
More important
Equally important
More important
I understand that my symptoms may come back after surgery.
I'm not sure I want to have surgery if my symptoms might come back.
More important
Equally important
More important
The risks and complications of surgery don't concern me.
I'm worried about the risks and complications of surgery.
More important
Equally important
More important
Whatever it takes to let me use my hands again is worth it.
I'm not willing to have surgery to regain the use of my hands.
More important
Equally important
More important
My other important reasons:
My other important reasons:
More important
Equally important
More important
4. Your DecisionNow that you've thought about the facts and your feelings, you may have a general idea of where you stand on this decision. Show which way you are leaning right now.
Having surgery for Dupuytren's disease
NOT having surgery for Dupuytren's disease
Leaning toward
Undecided
Leaning toward
5. Quiz Yourself
Check the facts.
1.
Will surgery cure your Dupuytren's disease?
Yes, that's right. Dupuytren's disease comes back after surgery nearly half the time. You may need another surgery to keep the use of your hands.
2.
If your condition is very bad and you delay surgery, can it make your recovery harder?
That's right. Delaying surgery when your condition is very bad can make the surgery and your recovery harder.
3.
Can other treatments be a good choice if you are still able to do daily activities?
You are right. If you are able to move your fingers and do daily activities, you might benefit from other treatments first.
Decide what's next.
1.
Do you understand the options available to you?
2.
Are you clear about which benefits and side effects matter most to you?
3.
Do you have enough support and advice from others to make a choice?
Certainty.
1.
How sure do you feel right now about your decision?
Not sure at all
Somewhat sure
Very sure
2.
Check what you need to do before you make this decision.
- Nothing. I'm ready to take action.
- I want to discuss the options with others.
- I want to learn more about my options.
3.
Use the following space to list questions, concerns, and next steps.
References Citations Gudmundsson KG, et al. (2003). Guillaume Dupuytren and
finger contractures. Lancet, 362(9378): 165–168.
Brown AN, Gilkeson GS (2005). Fibrosing diseases:
Diabetic stiff hand syndrome, Dupuytren's contracture, palmar and plantar
fasciitis, retroperitoneal fibrosis, and Peyronie's disease. In WJ Koopman, LW
Moreland, eds., Arthritis and Allied Conditions: A Textbook of Rheumatology, 15th ed., vol. 2, pp. 2093–2108. Philadelphia: Lippincott Williams and Wilkins. Townley WA, et al. (2006) Dupuytren's contracture
unfolded. BMJ, 332(7538): 397–400.
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